In September 2004, I suffered from exposure
to fumes from a house fire in a home with
large amounts of high lead-content paint,
as well as other chemicals including mercury.
I suffered brain damage, manifesting in several
ways, but most prominently as a loss of social
skills and problems with short term memory.
An excellent way to describe my condition
is that my condition prevents me from being
able to explain my condition - something
I had to learn how to express.
Document explaining my disabilities
This condition is the primary reason for
my choosing life on The Disperser. What I
have come to understand from losing my social
skills is what they are: dishonesty, mostly
in the form of hiding our true feelings.
I prefer an honest life, even if it means
only ever being with someone I trust completely
and never having contact with anyone else.
In 2012, I was diagnosed with a condition
which is caused by a genetic defect. In my
case, my immune system does not process lipid
(fat) soluble toxins so that my body can
eliminate them through what is called the
bile cycle. Instead, these toxins accumulate
in me unless removed by other means. This
means two things: one, I cannot be in an
environment where there are any such toxins,
and this includes a class of toxins known
as VOCs, meaning Volatile Organic Compounds,
which are absolutely everywhere, in small
quantities, in any modern society. It also
means I am extremely sensitive to a particular
toxin, the one found in black molds. The
fire which caused my brain damage was actually
in part caused by this genetic condition,
as aflatoxin, the toxin in black molds, causes
loss of cognitive ability and affects memory.
Fortunately, I discovered a treatment: citrus
pectin, which I now make, chelates this toxin
and that allows my body to remove it. And
as my ship is made of cement, and I have
acquired a treatment which prevents mold
from ever growing on the hull, as long as
I take other precautions, I will never have
any problems with mold.
For reasons which remain unexplained, I developed
allergies and sensitivities to foods which
I began to notice in 2010. These sensitivities
now mean I can only safely eat meat, though
I tolerate nixtamilized, white, non-GMO corn
(corn soaked in calcium hydroxide which partially
digests it) in small amounts with only relatively
minor discomfort. If I eat anything else,
my intestines swell and burn for three days
and I suffer intestinal blockages and constipation.
Because of my diet, my being away from environmental
toxins, my being in a controlled environment
of my own creation - my ship, and now finally
having the live-in caregiver I require; I
now experience excellent overall health.
Thanks to my diet, I lost close to 100lbs
and have kept it off consistently for six
years now. I feel better than I have felt
all my life, and I am stronger and healthier
than ever. I also heal much faster, easier,
and more thoroughly because my immune system
isn't busy fighting off toxins from the environment,
a battle my body started to lose because
of a lifetime of accumulating in my body.
Now that I am free of those problems, my
health is great. Unfortunately, I cannot
fully enjoy it because of the limitations
caused by brain damage.
Disability and Discrimination:
I was exposed to enough lead and other heavy
metal to have caused physical damage to my
brain. This damage had two areas of effects:
phyisical health, and mental health. This
damage is physical, which means that it is
permanent. And because there is physical
damage, my condition, while manifesting as
mental symptoms, has an organic, or physical
cause. Believe it or not, I spent ten years
trying to prove this fact to Social Security,
only to get disablity for some of the symptoms:
testimony to how difficult my situation is,
both to understand, and to tolerate.
The brain damage affects me physically because
a part of the brain that controls many hormones
and regulates many body processes was damaged.
This included regulation of salt and body
temperature. I have to consume a lot more
salt than normal, and have to drink a lot
of water to make up for it so that I don't
damage my kindeys even further than they
were by my step mother's home remedy which
left me with a massive cyst on one of my
kidneys. I also have a very difficult time
adjusting to changes in weather and am very
sensitive to hot and cold temperatures. I
am also prone to overheating and heat exhaustion.
Lucky for me, the best way to cool down is
to jump in water, and living on a sailboat
means I'll never die from overheating.
Mentally, I was primarily affected by the
loss of what we call social skills. Because
I cannot easily relate to people, and because
I cannot easily or accurately explain myself,
people easily misunderstand me and worse,
often make assumptions about me, assumptions
which are almost always the polar opposite
of how I truly am.
The net result of this, from my perspective,
is that I am actually nearly universally
discriminated against. This is not to say
that people intend to discriminate against
me or deliberately mistreat me or financially
take advantage of me. But it happens, and
there certainly isn't much I can do about
it, other than having someone who can represent
my interests for me. This was impossible
to find in the USA, which is the reason I
decided to leave. But in Mexico, it means
we have to trust someone to do so for us,
and finding someone either to volunteer,
or whom we can pay and trust, has so far